Ian Brown’s son, Walker, was born with a genetic mutation so rare that doctors call it an orphan syndrome: perhaps one hundred people around the world live with it. In his moving account, The Boy in the Moon: A Father’s Search for His Disabled Son, Brown describes Walker’s life and how his family help him live it.
The Canadian journalist and broadcaster joined Hilary Harper for a conversation about disability, expectation, power and control. They discuss non-verbal communication, Brown’s vision for an integrated high care community, and what it takes to rediscover your own needs after focussing completely on another’s.
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