





Tracing the origins of HIV and AIDS is a slippery task. You can always go one step back. For Australia, HIV was an American import, helped along by gay men who frequented cheap Skytrain flights between here and San Francisco in the early 80s. Before that, there was so-called Patient Zero, a gay and promiscuous French-Canadian plane steward who knowingly and unapologetically infected hundreds of men around the world, triggering off a global epidemic. And we can go even further back than that, to the moment of first transmission: most likely an African hunter who contracted a simian version of HIV by accidentally mixing his blood with a chimpanzee’s while slaughtering it for food.
Whatever its starting point, Australia recorded its first official death from AIDS six months after I was born: July 1983 at Melbourne’s Prince Henry Hospital. The man was 43 years old. He was the first Australian casualty and wouldn’t be the last. Being 29 means I’m old enough to vividly remember the Grim Reaper advertisements from 1987, but young enough not to have known a single person who has died of AIDS. When I think of my boyfriend and gay friends our age, it’s unimaginable to think of us all having to fight our way through what Stephen Dunne once described in the Sydney Morning Herald as ‘that awful time’. Dunne wrote:
Australia’s experience of HIV/AIDS in the 1980s and 90s is thus ancient history, and so much of that time is gone: a time of the dead and the dying; vigil shifts at ward 17; watching brilliant and beautiful men sliding into garbled dementia; polite efforts to avoid funeral scheduling conflicts; two full pages of obits in the Sydney Star Observer; anger and love and screaming horror at the waste of so many lives.
It’s a litany of horror, but it’s the detail about ‘funeral scheduling conflicts’ that really unnerves me: the idea that so many of your friends could die in one hit that you would have to prioritise and schedule their funerals in your diary, like so many terrible lunch dates.
All these things happened while I was alive, but the realities of that era were largely lost to me until I saw Tommy Murphy and David Berthold’s stage adaptation of Timothy Conigrave’s memoir Holding the Man in 2008. Over six nights, the play sold out each evening, with over 500 people in the audience at every show. By the final scene, the only thing you could hear was the muffled sobs of every person in the room, my mother, siblings, boyfriend and me included. It was as though the entire theatre had become a funeral, strangers bound together by grief over the lost lives of these two men – Timothy Conigrave and his lover John Caleo – who were both real people, and would have only been in their early fifties now if they’d still been alive. I had never experienced anything like it. Then I read the book.
Holding the Man was first published in 1995, only a few months after Timothy Conigrave died. It’s a monumentally loved book: just mention its title and it’s enough to trigger off a wave of people’s recollections of first reading it and the emotional toil it took on them. It won the UN Human Rights Award for Non-Fiction in 1995 and was issued as an orange-and-white Popular Penguin in 2009. Somewhere along the line, Holding the Man unexpectedly and quietly became an Australian classic.
As much as the book is about losing your lover – and, ultimately, yourself – to HIV and AIDS, Holding the Man is fundamentally a love story. It has the kind of premise that would sound unbelievable if it had been written as fiction. In the mid-1970s in Melbourne, high school student Timothy Conigrave meets John Caleo at their all-boys Catholic school. Timothy, a burgeoning theatre fag, falls hard for John, the captain of the football team, who has incredibly long eyelashes. Tim writes:
On the far side of the crush I noticed a boy. I saw the body of a man with an open, gentle face: such softness within that masculinity. He was beautiful, calm. I was transfixed.
It’s an unlikely pairing – Caleo is Best and Fairest of the rugby team, for Christ’s sake – but the boys fall for each other and the relationship works. As school progress, Tim and John’s relationship is subject to their parents’ ferocious disapproval – especially John’s – but some of their friends almost barrack for them. One scene that has stayed with me is where Tim and John’s straight male friends give them a friendly, blokey round of applause after they’re caught having sex together. It’s something I can’t imagine happening amongst Australian male high school students now. Teachers who discover the boys’ relationship have reactions that range from muted to tacitly supportive.
After Tim and John leave school, they build a life together and pursue their careers: Tim goes to NIDA; John becomes a chiropractor. And like most gay couples at the time, they begin to test and play with the sexual boundaries of their relationship. This all coincides with news of a gay-targeted disease, initially called ‘the gay cancer’, which becomes GRID (Gay Related Immune Dysfunction), which is then finally recognised as HIV. John and Tim are both diagnosed as positive in their mid-twenties.
Tim started writing Holding the Man in the early 1990s, after John had died. At a New Year’s party in St Kilda, he ran into the writer and editor Sophie Cunningham, who was then working as a publisher at McPhee Gribble. When Tim told her about the manuscript he was putting together, Sophie told him that she worked in books. For months at a time, Tim and his friend, playwright Nick Enright, would refine the chapters of Holding the Man closely before delivering them to Sophie. ‘It was in rough shape, but I knew I was onto something special,’ Sophie says now. ‘There was something about the voice, clarity, humour and directness of it. It’s the book I’m most proud of having published.’
At the Adelaide Festival in 1994, Nick met up with Sophie and said that although Tim had nearly finished the manuscript, he suspected that when it was finally done, Tim would be too. In September that year, Tim delivered the completed draft to Sophie over lunch, then died a few weeks later. ‘It’s like he held himself together through sheer force of will,’ Sophie says. True to his character, the last thing Tim ever said to Sophie was that she looked good blonde, and should keep her hair that way.
Filmmaker Tony Ayres – another person Timothy Conigrave befriended before his death – once said in an interview: ‘If the story of the impact of AIDS in Australia was going to be told in a mainstream way, [Holding the Man] was a very good way of telling it. Because even though it’s a tragedy, it’s not a dark tragedy. It’s accessible. It’s a love story, it’s very moving and one that wouldn’t alienate a straight audience.’ Ayres is right. Holding the Man might be regarded as essential queer reading now, but Sophie Cunningham remembers that upon its release, all sorts of people in Melbourne were reading it: straight men; gay women; mothers-in-law. ‘It wasn’t big straight away,’ she says. ‘It was more enthusiastic in a low-key way and never stopped. It didn’t become a bestseller. It was actually quite a Melbourne book, at first. There was a sense of slow and steady sales which actually just never stopped. It’s quite an unusual sales pattern, really.’
In the 17 years since its release, there have been very few criticisms of Holding the Man. It’s generally harder to criticise memoir: it feels mean-spirited to dissect the written account of someone’s own life, since any attack feels personal. Those complications are of course amplified in a book like Holding the Man, a book written by a dead man, about his deceased lover. Any feelings we have towards the book can’t be disentangled from what we feel about what Tim and John had together, then lost.
One enduring criticism of the book is that it’s too simply written, or that it reads like YA fiction – as if that, in itself, is somehow a sign of bad writing. In a sense it’s true: sentence by sentence, Holding the Man is not a challenging book. It’s the type of uncomplicated read that you can finish it off in a single Sunday afternoon, given the time. But that simplicity in style doesn’t equate to simplicity in subject matter. The topics Conigrave unravels in Holding the Man – for instance, the guilt that comes with knowing you possibly infected and killed your lover – are difficult to wrestle with. The book might be romantic, but it doesn’t romanticise. Some claim it reads too much like a fairytale, but I struggle to think of a fairytale that regales readers with all the confronting mechanics of sex (semen and shit included). Recently, Tony Ayres told me that the fairytale quality of the book was exactly what he loved about Holding the Man. ‘[Holding the Man] is a fairytale,’ Ayres told Outrage years back, ‘but so was Tim’s life. He met a boy when he was 15 and they stayed together until they died.’
Sophie Cunningham says she still gets emotional about the book: she essentially read the manuscript for Holding the Man as Tim was dying in a room nearby. Timothy was the first person to whom Cunningham had been close who died. ‘The shocking thing about the AIDS epidemic was just the sense you could get a fucking epidemic,’ she says. ‘Suddenly thousands of people are dying. Yes, they happen to be gay, but next time it could be another demographic. It was that sense of having a disease where no one knew what it was. It was shocking to everyone. Still, I’d hate for Tim’s story to be seen as a kind of fairytale horror story of What Did Happen, because to some extent this stuff still happens. It was more extreme then.’
It does still happen, of course. The first time HIV properly came onto my radar in any real sense was in Brisbane during the early 2000s, when one of my boyfriend’s flatmates – a handsome and obscenely young gay guy, only in his early twenties – came back from the doctors with a HIV positive diagnosis and broke down in front of the entire household with the news. It was a massive shock. But looking back, this was also a period in which HIV rates amongst young gay men drastically spiked in my home state of Queensland. Here, HIV infection rates rose by 50 per cent in the past year alone, rivalling figures from the mid 1980s. The difference is, of course, that HIV is not the death sentence it was then. There is still no cure, but at least we know what we’re up against now. Back then, in Tim and John’s era, we were all just soft targets.
Everyone projects their own stories onto Holding the Man. Like Timothy Conigrave and John Caleo, my boyfriend Scott and I knew each other in high school. When I finished reading Holding the Man for the first time, it was 3am in Brisbane and Scott was away in New York for what would be three months. The book struck me as both beautiful and horrible, the way it demonstrated that so much of our luck – and our survival – depends entirely on the era and circumstances into which we were born. If Scott and I were contemporaries of Tim and John’s, it’s likely the both of us would be dead too. Wrung out and wracked, I tucked myself into bed after reading the book and silently cried myself to sleep. Part of the grief people feel when reading this book is over Conigrave and Caleo, but I suspect it’s also for themselves. Holding the Man might be a love story, but it’s also a book that forces us to confront the fact that all love stories – including the ones to which we belong, in real life – must end in death.
Still, Holding the Man is not all misery. It’s a funny book and easy to love. It stands as a reminder of our victories, too. By the time Timothy Conigrave died, Australia had resoundingly won a huge public health battle against HIV. While other developed countries saw HIV’s spread as a reason to ensure homosexual sex, sex work and intravenous drug use remained criminalised, or to restrict those practices even further, Australia’s then Health Minister Neal Blewett worked across partisan lines to implement strategies that engaged with at-risk groups to ensure gay sex, paid sex and injecting drug use could continue safely without spreading HIV. Public education about safe condom and needle use was staggering. Our AIDS situation was effectively cauterised by a bipartisan urgency rarely seen in politics nowadays. The Australian Model is still regarded as one of the world’s swiftest and most successful responses to HIV. It’s a history of which more Australians should be proud, but so few of us even know it happened.
It’s one of the reasons why I wish there were more friendships between Gen Y queers and their older counterparts, especially ones who lived through HIV and AIDS. There is something about mainstream gay culture that almost tacitly discourages interaction between gay men from different age groups, or at least considers it suspect. It’s a shame, because there is a lot to share. I only have a handful of gay friends who are in their forties, fifties and sixties, but I’m making more of them as time passes, and I value how our conversations educate, humble and embarrass me, revealing how appalling little I know about my own community.
One of my newer friends, George, recently recommended a book to me called And the Band Played On (Randy Shilts, 1987). I still haven’t finished it, not because it’s boring, but because it’s so engrossing that it could possibly take over your life if you let it. It’s a blow-by-blow account of how the AIDS crisis developed in America and the world, and it reads like a thriller. It includes a dense cast of characters at the start, as if the book is an operatic play or an epic. It’s the type of book that’s so huge that it could kill someone with a well-aimed throw to their head. That’s what history is: big.
And here’s one final shameful admission. When a mutual friend introduced me to Dennis Altman some years ago, I didn’t even know who he was. Here was the godfather of the Australian gay rights movement, and I just smiled at him and turned a blank, because that’s youth for you: we just don’t know shit. Dennis and I are now friends, and when he recently signed his reissued copy of Homosexual: Oppression & Liberation for me, I found myself thinking that it would be fair if members of his generation felt a howling frustration towards mine: Don’t you know what we survived? Those cross-generational conversations can still happen and they’re important. Reading Conigrave’s Holding the Man for the first time, it felt like he and I were having one of them. Those conversations can be kind, too. It was only days later that I read what Dennis had inscribed in my copy of his book: for Ben, who was not born when I wrote this.
Benjamin Law is a Brisbane-based writer and journalist. His essays have been anthologised in Best Australian Essays twice, and he is a frequent contributor to frankie, the Monthly, Good Weekend and Qweekend. He has been published in over 50 magazines, websites and journals in Australia and worldwide.
Ben’s debut book The Family Law (2010) was shortlisted for Book of the Year at the Australian Book Industry Awards (ABIAs). His second book Gaysia: Adventures in the Queer East is released in September 2012 through Black Inc.
He holds a doctorate in creative writing and cultural studies from the Queensland University of Technology. He lives in Brisbane.
Holding the Man
A review of the play adaptation of Holding Man in the Sydney Morning Herald.
The AIDS epidemic
Paul Sendziuk in Eureka Street on ‘Australian Responses to AIDS’.
And the Band Played On
The New York Times review of And the Band Played On.
I feel moved having read this piece: to consider the things I don't know which exist around (and have existed before) me, and to read this book. Thanks, Ben, for your typically sharp and eloquent consideration, insight and humanity.
Jon
03 June at 03:03PM
Wow Benjamin, what beautiful writing.
I was moved to sobs last night watching We Were Here on ABC2, a documentary about the rise of HIV in San Francisco. It was amazingly beautiful, truly haunting.
I think one of the saddest things is thinking about all the wonderful men and women who have died of HIV/AIDS, and the contributions they would have made to society. But one of the amazing things to come out of HIV is the way (some) people responded with such love to those who were sick.
I think I'll try and get a copy of both of the books you mention, I'm now really interested in this era, as, like you, I was born in the early 80's and don't really know much about it.
JessB
04 June at 01:10PM
hey Ben: I shall take it you are using the word 'godfather' in its sinister rather than its grandfatherly meaning...X Dennis
04 June at 04:20PM
Lovely piece of writing Benjamin, and as someone who lived through the early 80s as someone with HIV and then AIDS, I think you covered the details accurately. You can't of course relate stories of the grief and loss, the incredible commitment of volunteers, families and lovers to those were unwell and dying but you make a great point about the need for intergenerational discussion on the topic. We wouldn't ever want to go there again.
David Menadue
04 June at 06:14PM
Beautiful piece, Benjamin. I also saw the We Were Here documentary last night on ABC2 and can't recommend it highly enough. Terribly sad but somehow not bleak. It's on iview here: http://www.abc.net.au/iview/#/view/22754
I was fortunate enough to have Dennis Altman's book, AIDS and the New Puritanism as one of my texts at uni. The work of fiction I remember vividly from the era is Scissors, Paper, Rock by Fenton Johnson, published in the US in 1993.
I've always meant to read Holding the Man. Your piece has sent it to the top of my reading pile.
Angela Savage
04 June at 08:00PM
Thank you for a beautiful and moving essay Ben. I feel similarly. And always grateful to be reminded of these stories and this history. These people. We owe them so much respect.
05 June at 08:56PM
I grew up as a child of the eighties, also, and firmly recall the fear and sadness of the AIDS crisis. I was probably uniquely placed, as my mother was working at the Victorian AIDS council and Gay Men's Health Centre at the time, and so my primary school years are filled with the memories of watching as the most kind and decent men seemingly withered away. This was a brilliant piece, and very moving, and it made me recall those memories, which is a bitter-sweet thing.
Joe Zbar
06 June at 12:18PM
Everything I read be Benjamin Law reinforces my growing suspicion that he's becoming one of the great writers of non-fiction in Australia. He's smart, funny, unpretentious, clear, elegant, affecting. Another powerful piece, especially so for its reflections on the different reality faced by this generation.
Misha Ketchell
06 June at 12:28PM
beautiful, considered and thought provoking essay about a time I lived through and people I lived with. Your writing and imagery continues to amaze.
Sarah Masters
06 June at 04:56PM
'And the Band Played On' was translated into an amazing film that I think is a must see. It has a cast of thousands - Matthew Modine, Alan Alda, Sir Ian McKellan, B.D. Wong, Richard Gere . . . the list goes on. I bring it out every few years because it is a sage reminder of how complicated the political and social worlds are around illness - and how a lack of political will can lead to such destruction. Equally, I am also moved by the collaborative efforts amongst various players in the story - leaders in the gay community, the CDC researchers trying to stem the spread, etc. It should be compulsory viewing for upper high school students. I was at a conference with Michael Kirby a number of years ago and was intrigued to hear that he sat on a UN AIDs body whose membership included some of the characters in that film . . . .
Melinda
09 July at 01:04PM
I cannot go to see the play it destroys me. The book did too. I know this is hard to hear and write, but to me, I didn't meet Tim but he was a saint. Maybe him and others didn't see him that way, but he was brave to write it so we may not experience what they did. I also know this is difficult to hear, but as sad as it is we MUST believe when Tim passed he is with John. I know to many that is offensive, but I have to believe that is what has happened since Tim's time on earth ended. We have to. If not, we have no hope. So perhaps even though we may cry over the last bits of the play and book, there is a happy ending. A place where they both will never for eternity feel the pain and fear of their last weeks, and no separation. We have to even if we do not believe in an afterlife. If we don't then the memoir destroys hope. They are together. I just wish it could be proven as I'm sure Tim wishes we could all be happy again and that his story was a meer blimp in eternity which will NEVER happen to them again.
Craig
03 December at 01:37AM
Great stuff Ben, it is a life changing book that Gen Y same sex attracted people should all read, and just any person. You are right, you don't just mourn for John and feel the pain that Tim felt, but also see parallels within ones own life. Whether it is the last goodbye at a hospital bedside, or the thought that so and so would really enjoy this if they were still here, or seeing someone wither away as sickness takes hold. I had to get through the last forty or so pages with eyes filled with tears and the odd breakdown of uncontrollable I crying.
I must point out, being a Victorian, that John played AFL not Rugby, which is clear when the title is explained. It refers to a transgression, in the game of AFL, of unlawfully holding an opposing player, and is often yelled by barrackers from the side lines.
Haydn
07 February at 04:21PM
Beautifully written, Benjamin - Holding the Man is a love story for all time and the simple, graphic prose sometines blindsides you. John Caleo, more than Tim, has heartbreakingly stayed with me since I first read this book many years ago - his shy strength, sweet nature and physical beauty haunt me somehow....I often wonder if Tim's book was the confessional of a guilty soul. For John's family, I think certain details could have been left out, but of course, conversely, the warts and all element makes the book the triumph it is.
Katrine P
04 March at 08:26PM
I agree a well-written review. With the play currently on in Brisbane as at this time I write this in March 2013, I would like to comment. I do not agree with Katherine's comment that things should have been left out for John's family. I do agree that perhaps it was written out of guilt. But the issue is that many, I know I do, just want to reach out and make things better. I agree with Craig that perhaps one must believe in death there was absolution and forgiveness, though I have not read what Tim or John's families and relatives think of this. The other issue to me is, you cannot blame open relationships. It is a disease that caused this. That Tim wanted to go outside the relationship and John did not, if I am reading the book right, is a common relationship problem and part of who we are in such relationships. It was to me the lack of information at that time about transmission. Yes, it is likely if this happened now they would be alive rather than at that time. But time to me is not judging Tim, but is also feeling so much for John. That is healthy rather than judgement and condemnation. I will say one thing - I hope Tim did not write this as a warning. We know that monogamy is not 100% safe sex even after testing, so to use his book as a cautionary tale by the same-sex marriage mob, or by religious or others to condemn sexual practice would be wrong. There are lots of healthy open relationships. But at the same time, the story should not be ruled by the virus or by the guilt and sadness of consequences that were biological (remember there is another movie out at the moment about an old couple facing a stroke), but rather to me two fellas simply a part of history that now is just that as we move towards the control and elimination of this disease. Feel what you want about them, fall love with John, get angry at Tim, view the lessons it brings. But John and Tim are what many face even now in relationships if we want to have extra relationships outside our primary one. That is not for condemnation, but for examination. Maybe as Craig writes, John and Tim long ago reconciled in another life and are together. That thought makes me happy even if we in this life don't know if that is true or believe it.
Michael
06 March at 10:24AM
Whilst involved in research on Gay Cancer / GRID / HIV AIDS in Toronto & New York City (1981-1999), I often wondered the extent to which Australian gay men realised the enormous importance of Neil Blewett's efforts - when many of his Grim Reaper posters were deemed pornographic by courts around the world. The point is, along with everything else, they worked, & protected Australia.
We worked every day with loss: patients' loss of family ("We told you God would punish this sin. The Bible says so. Now just look at you."); their Kaposi's sarcoma and corollary
loss of vanity if not also of sanity and, along with their dementia, their piss and shit and vomit and bite marks. Scariest of all was the existential loneliness we could only assuage by climbing in bed with them for a hug on the way to being tested ourselves again -- AIDS and its many cruelties taught more about fear and the often tenuous nature of relationships, even if ruptures were due to death.
And of death..there were circles of assisted suicides: this was not Peter Pan. Typically if one partner was ready to die the other could not, for fear of obliterating desperately needed insurance proceeds. No medical examiner looked too long or hard at a 25kg AIDS patient whose friends called in his death to the police. Add a second corpse, however, and all manners of inquiry are set in motion, typically at great loss to the estate, who in the US in particular, may find themselves bankrupt to pay residual medical costs.
During the period 1981-1999, I was present as a witness at 80 assisted suicide amongst AIDS patients who had repeatedly, whilst competent, requested that this be their mode of death. I also attended 290 AIDS funerals.
Ben, I honour your work, and command your honesty. "And the Band Played On" might be a way to transcend generations in reading groups. It starts arrestingly enough, and the pseudo-biblical "begats" - once understood in that light, hardly need get in the way. Congratulations on a great piece from the next generation: let's hope to keep it that way!
Dr. Sylvie Tourigny
15 May at 07:35AM